Bill.Elwood@p0.f152.n1077.z1.fidonet.org (Bill Elwood) (02/04/90)
Index Number: 6598
does anyone else out there have any experience (real life) with reflex
sympathetic dystrophy? i got it and i'd like to hear fromothers who
know about it. Either having it your self or someone in your family who
has it. THANX ## Bill Elwood ##
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!1077!152.0!Bill.Elwood
Internet: Bill.Elwood@p0.f152.n1077.z1.fidonet.orgPat.Buttons@f111.n321.z1.fidonet.org (Pat Buttons) (02/10/90)
Index Number: 6642
YES I do! It started about 4 years ago. First in my left hand from the
wrist to all my fingers. EXTREME PAIN constantly and inflamed skin and
swollen so bad. I used a elastic type glove to keep it warm and give it
some support it was helpful. About a year of this with taking Presnisone
I was able to start feeling better. Then the exact thing happened to the
other hand and another year of pain, medicines, physical therapy, etc.
Write me more...
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!321!111!Pat.Buttons
Internet: Pat.Buttons@f111.n321.z1.fidonet.orgBill.Elwood@p0.f52.n104.z1.fidonet.org (Bill Elwood) (02/13/90)
Index Number: 6747
I got it from my right elbow (unbelievably sore spot there) down to my
wrist after having my right arm shortened by an inch to compensate for
removal of the readial head. I also had an ulnar transfer to get the
crazybone nerve moved out of the travel of the bones. I have had all
this unbelievable pain for 2 years. I spent an entire month. I was to
.... I spent an entire month awake! I dumped my Dr. {To my advantage!}
after having these nightmareish nerve blocks through the adams apple
and into some ganglia near the spine... The jerk giving them to me
missed as many as 5 times per treatment. They knew that they hit the
right spot when the right eye got droopy. I think it was a
troubleshooting technique more than anything. I hated it... I also went
to a pain clinic where the 2 (ahem) people running it told me that I
was ineligable as a "candidate" because my pain was real {thats post
$1500 for testing in Medical terms}. I also took L- Triptopan, on the
pain clinics' advice... It was recently removed from all shelves for
causing a rare fatal blood disease. My arm and hand have a mind & soul
of thier own... it is sometimes very hot and sweaty, sometimes ice-cold
and very sweaty, and almost at all times just like the sensation normal
people know as just having hit thier crazy-bone. I have become very
good at masking pain for short periods of time by mentally re-directing
my anger. But I still have a long way to go to be "safe company". Tell
me more about you. Where are you? Do you use Biofeedback? How do you
deal with the anger?
## Bill Elwood ##
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