Patrick.Daugherty@f211.n260.z1.fidonet.org (Patrick Daugherty) (06/28/90)
Index Number: 8901
[This is from the Spinal Injury Conference]
I have established a BBS here in Rochester, N.Y. in the hopes of
catering to the medical community. My wife and I are both medical
professionals (she is an Occupational Therapist and I am a Physicians
Assistant). We both get all the "trade magazines" and I found several
articles in one of hers (O.T. Week, June 21, 1990 Vol.4, No.24). It
was devoted to spinal cord injuries. Articles included
rehabilitation, statistics, prevention, careers and recreation. I am
not sure of "O.T. Week's" willingness to distribute to
non-occupational therapists however if anyone wishes to give it a try
the address is;
O.T. Week
1383 Piccard Drive
Rockville, MD 20852
(301)881-2490
(301)881-2497 (Fax Line)
Other items some may find of interest included in the magazine;
The Paralysis Society of America (PSA) has issued its latest research
brief. This was based on responses obtained from detailed
questionnaires presented to spinal cord injury patients. A copy of
the SCI Research Brief may be obtained by contacting;
Thomas E. Stripling
Paralysis Society of America
Paralyzed Veterans of America
801 18th St. N.W.
Washington, DC 20006
(201)872-1300
(No fees or stipulations for a copy of this brief were noted.)
....................................................................
Information regarding functional neuromuscular stimulation (FNS) may
be obtained by contacting;
The Functional Electrical Stimulation Info. Ctr.
W.O. Walker Industrial Center
10524 Euclid Ave.
Cleveland, OH 44106
(No fees or stipulations regarding this information were noted.)
....................................................................
Information regarding a "new" sport called Quad Rugby may be obtained
by contacting;
Sonja Braasch
Tampa General Rehabilitation Center
P.O. Box 1289
Tampa, FL 33601
(813)251-7708
Brad Mikkleson, Commissioner, U.S. Quad Rugby Assn.
2418 West Fall Creek Court
Grand Forks, ND 58201
(No fees or stipulations regarding this information were noted.)
....................................................................
If anyone finds any of the above mentioned information of interest or
helpful, please let me know and I will continue to post information
as we find it.
Patrick Daugherty
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!260!211!Patrick.Daugherty
Internet: Patrick.Daugherty@f211.n260.z1.fidonet.orgJocelyn.Lovell@f415.n259.z1.fidonet.org (Jocelyn Lovell) (07/04/90)
Index Number: 9042
[This is from the Spinal Injury Conference]
Pat, include the following in your list!
SPINAL CORD SOCIETY - The Spinal Cord Society's motto, "Cure-Not Care",
and its logo, a wheelchair symbol crossed out, have encouraged an
entirely new and optimistic outlook for the "paralyzed". "Cure-Not Care"
does not mean SCS is against care. Everyone needs care. On the contrary,
what it stands for is improving care to its logical goal of cure.
RESEARCH - Since the inception of SCS our aim has been toward one goal
- cure of spinal cord injury. Until W W II most people died from SCI.
With the discovery of antibiotics and modern rehab techniques, spinal
cord injured persons have been able to survive. In the following 45 five
years not much has been done in the area of spinal cord injury cure
research. The system of rehabilitation for SCI has been to accept and
to adjust to life in a wheelchair. SCS prefers to use the dictionary
definition of rehabilitation - that is "restore to original condition".
SCS has a targeted approach towards cure research. Without a targeted
programme, research without a definite practical goal, merely becomes a
toy. The goal of SCS is cure. All research we support must be directly
aimed at that, or, if not, at least have that as the end result. 100% of
all funds raised for research, GOES to research and all projects are
strictly reviewed by a panel of consulting physicians and scientists.
PURPOSE - Spinal Cord Society and Spinal Cord Society Canada is a large
grass-roots organization of the injured, their family and friends, and
dedicated scientists and physicians who are all aiming at the ultimate
goal of CURE through the means of research and improved treatment.
HISTORY AND DESCRIPTION - Spinal Cord Society was founded in November
1978 because of dissatisfaction with the direction and priorities of
spinal cord injury treatment and research.
SCS raises funds for research, performs public awareness and publishes
a monthly newsletter with information on the current progression of cure
through its research. The SCS has hundreds of chapters throughout the
world and is growing rapidly.
SCS sponsors conferences relating to the latest cure research in the
field of SCI. Prominent scientists present papers, exchange information,
and importantly, keep the spinal injured informed on progress.
THE DIFFERENCE - We are voluntary - no one is paid.
While there are a lot of well-meaning organizations working in the area
of SCI, their goals have differed in the past from ours. Our goal from
the beginning in 1978 has been cure for spinal cord injury and has
remained just that. Access, care, coping, sports etc. for the disabled
all have a place. But we feel it is not at the head of the line. Cure
must be first and foremost.
THE MILESTONES TO CURE
BEFORE 1940 - A spinal injury usually meant a death sentence.
1940 Antibiotics & rehab enable patients to live but not be cured.
1950s Drugs & oxygen first used to reverse paralysis in a few new cases.
1960s Late Decompressions began although first done in 1930s.
1968 First spinal cord cooling operation (hypothermia) on new injury.
1976 Clinical use of hypothermia used on new injuries in Canada.
1978 SCS FOUNDED. Newsletters tell of need for centralized research.
1979 First SCS research grant made.
1980 First SCS chapters formed.
1981 First SCS Cure Research Conference.
1982 FES computerized walking brought to the forefront by SCS grants.
1982 First National Convention. Researchers say regeneration feasible.
1982 SCS computer Data And Referral System begun.
1983 First artificial bone substitute research funded by SCS.
1984 First chronic Spinal Cord Centre started at U. of Minnesota by SCS
1986 First axonal regeneration by applied electric fields - SCS project
1987 First restoration of adult mammilian spinal cord function. SCS.
1988 Trial on chronic, naturally injured paraplegic dogs begun.
1989 Magnetic stimulation on SCI people to determine preserved axons.
THE SPINAL CORD SOCIETY plans to continue its efforts to increase
public awareness of progress in this crucial field and to focus research
and advanced treatment in a centralized programme for cure.
.....contact......
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!259!415!Jocelyn.Lovell
Internet: Jocelyn.Lovell@f415.n259.z1.fidonet.orgJocelyn.Lovell@f415.n259.z1.fidonet.org (Jocelyn Lovell) (07/04/90)
Index Number: 9043
[This is from the Spinal Injury Conference]
Pat, after "contact" in the last message to to you I left out:
SCS, Wendell Road, Fergus Falls, Minnesota, USA, 56537, ph.218-739-5252
SCS Canada, Box 707, King City, Ontario, Canada K1L 8B9 ph.416-833-1235
These are the addresses for people who wish to subscribe to the SCS
newsletter described previously. Anyone wishing more information can
just contact me on this echo.
...........Jocelyn
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Internet: Jocelyn.Lovell@f415.n259.z1.fidonet.org