Jay.Steinhardt@p3.f230.n231.z1.fidonet.org (Jay Steinhardt) (08/23/90)
Index Number: 9945
Hi Robert!
Thanks for the reply. 1) please pardon my spelling, I am a Social
worker but along w/ the epilepsy comes dyslexia. 2) I would be
happy to join in. My BBS has only 1 echo for disABLED and that is
Abled. My partner is out of disk space at this time. 3) My
personal History: I am an uncontroalable case. I average 1-3
seizures/ week. In spite of this I work full time in affirmative
action for the disABLED.
Here is a sad statement about Indiana Awareness in Epilepsy. I
have been teaching about Epilepsy in Indiana since 1977. The
Indiana population is an interesting croud to teach. In 1979 I was
lecturing to a group of MD's. In the middle of the lecture I had a
Complex-Partial type seizure. As I came out of the Post-Ictal
phase I explained what had happened & then continued with the
lecture.
The perpose of the lecture was to bring the medical community up to
date on the new treatment methods and options for the client with
epilepsy. (In Indiana we are not allowed to say Epileptic. The
past director if Epilepsy Services issued this edict. She said
"Epilepsy is greek for seizure and you don't call a person a
seizure. I think she was a bit of a fanatic.) In the question &
answer section of the lecture an MD of a local hospital asked me
about the issue of swallowing my tonge. I asked the "Dr." if he
could swallow his, he said no. I then asked if when he diognosed a
client w/ seizures he seperated the soft pallett, he said no W/ a
room full of laughs. The sad statement is that he was just
unlucky. Many others here thought the same thing.
Since that time Epilepsy Service has Grown as a State wide
network. The State funds "Epilepsy Service Centers 20hrs/week 1
per 5-7 counties (Not much but better than nothing). The State
also subsidises a Epilepsy medical service center in Indianapolis.
2 days /week. This from the state that until a few years ago had
an Epilepsy Colonie & Epilepsy sheltered workshop. In fact my
first clients her were persons w/ epilepsy. Both husband and wife
were clients. They had a child and the neighbors would not allow
their childeren to play w/ the client's family out of fear of
"infection." The spouces were on SSI because they were convinced
they could not work because of their "condition".
These are tie stories that got me into affirmative action. If you
have questions about Special Ed Law 94-142, Regulations requiring
Federal Recipients to accomadate tge Handicapped ie: Sections 501,
502, 503, 504 of the Rehab Act. Civil Rights issues or the like
feel free to drop a line. Jay Steinhardt
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