Anne.Willis@f34.n129.z1.fidonet.org (Anne Willis) (08/10/90)
Index Number: 9691
Maybe you could talk to someone who can help. If your doctor can't
or won't take the time to listen to your fears, maybe you could go
see someone or even call one of those phone hotlines they have for
just about anything. Sometimes it helps to talk to someone over the
phone, it's a little more anonymous. I have been lucky I think, in
that I have never had any doctor tell me that I was imagining
things. But I have on occasion not had a couple of them listen to
me when I was having a problem. They made light of it, telling me
the problem was not as bad as I thought, but both times it turned
out to be, and as a result anytime I tell them someting, they
listen. What do you do about the light indoors? I figure you can
use sun block when you go out but you have to have light indoors.
What do you take for the arthritis? Will it continue to flare up
or will it eventually go away? I hope you don't mind the questions
but I want to learn more about Lupus.
Take Care Anne
# Origin: Atlanta Medical Forum -- (404) 351-9757 (8:7301/204)
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Internet: Anne.Willis@f34.n129.z1.fidonet.orgRusty.Ferguson@p2.f13.n123.z1.fidonet.org (Rusty Ferguson) (08/28/90)
Index Number: 10007
AW>the rhuematoligist (sp).( I know I didn't spell it right-it
Looks good to me. >grin<
AW>and I was talking to him and I just started crying. I'm
AW>having a rough time of it right now. I felt I could talk to
I'm truely sorry you are!
AW>nice and kind. I said that I am feeling kind of down. I'm
AW>not sure why exactly, but I think it's because I see no end
AW>in sight to all of this. I'm soooooo tired of all the IV's,
You know, I find that it is hope that causes my depression when it hits.
I've always heard that when you loose hope that is when it is all over.
While I don't think it is good to lose hope, I also find that is what causes
a lot of my pain. I hope it will come true even if it looks like it will
not. Once I accept I find I hurt less. (Boy have I got a lot of nerve to be
talking with the mood I'm in today. >grin<) Then again, we need to hope,
hope is a good thing but can cause pain. I'm not saying that is good or
bad, just something I've found to be true for me.
AW>in sight to all of this. I'm soooooo tired of all the IV's,
AW>meds, doctors, nurses etc. I don't feel well and I tired of
You sure have the right. Even I am getting tired of it and it's just
started with me. The other day when they ordered more blood work, I wanted
to just keep going and not go to the lab, who would know. I could say they
just lost it. But I know that would be kind of childish but it sure seemed
reasonable at the time. You should be sick of it. You sound very strong to
me, based on what little I've seen of you, you've earned the right to feel
down. Go ahead and allow it, sometimes a day or two of it can really help.
But then again to much of it......
I know!
AW>Well we talked (actually he talked I blubbered) and said that
^^^^^^^^^^^^
I really like someone that can laugh at themselves!
AW>it was reactive-stress. I told him that maybe he could
AW>recommend someone I could talk to. He gave me a name and
You sure are wiser than I. My wife and and a friend have been telling me
for the last year. Would I listen? No!!!!!!!!!!! I can handle it. I'm
tough! But you are tough yet you no when to ask for help. Wish I could do
that.
AW>nervous about going. Maybe this will all blow over in a few
AW>days and he said it might, but he felt that it had gone on to
AW>long to wait and see. I have to tell Jeff and I think he
I've got my first appointment scheduled for the first week in Sept. I dread
it in a way, and look forward to it in another. There is a lot of pain
ready to come gushing out I'm afraid and I don't want to feel it. But after
a couple of things I've done lately I know I need to do something. It was
when I couldn't remember doing those deeds is what woke me up.
I keep telling myself, it is part of the disease. I'm not abnormal. Is it
a weakness? Yes, just like lupus and Crohn's are. I understand your
feeling but I know they can help. In other words, it's nothing to be
ashamed of. I've seen thearpy help loved one, they did this person
much good, much! Jeff is going to stand beside you just like he always
does. That does help, doesn't it. I know this is all so hard on Patricia
but she keeps plugging away. And now I'm convinced she is ill too.
Yesterday was bad for her, something is wrong. She really LOOKED liked she
had lupus yesterday but Crohn's and lupus have so much in common it is hard
to say.
AW>admitting that I can't handle this alone. I feel weak. I'll
Who said this was bad? Where is it written. I understand how you feel and
have gone through the same things over and over for so many years. I
finally am looking forward to the help. I'm also hoping I can find an ally
that will get it through to my docs that I need information. I can't and
don't want to handle this alone. I want and need help and there is nothing
wrong with that. That is the way *I* feel though. Being alone is what I
fear the most yet I tend to isolate myself. We will let the shrink figure
that one out. >Grin< Pink Floyd's _The Wall_ is one of my favorite ablums.
It is about isolation, and a few other themes.
AW>Sheesh.......just typing this maked me nervous. Well, send
I also understand that. I find typing it so much easier than saying it. At
the support group meeting last night we were suppose to tell one of our
coping tactics. I wrote a message about writting. >grin< And I did take a
few messages from here, including the ones that you made my head swell from
on. >grin<
I really hope you get back up soon. Your messages have been so good for me
and I very much care what happens to you!!!!
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