Jean.Prophet@f33.n371.z1.fidonet.org (Jean Prophet) (11/14/90)
Index Number: 11667 [This is from the Spinal Injury Conference] > Everytime Shawn has one of those darn spasms, I have to catch my > breath. I think they scare me more than they do him. Yes, thank God It used to scare me but I guess I've gotten used to it happening now. I'm always fearful that he will have a spasm while going up and down the stairs (like he did last time) or when he's doing something he's really not suppose to do. (They probably scare HIM more than me though). > Isn't that a wonderful thing to look forward to. It's the darn pain, > that you feel so helpless about. You don't want them to become drug I think that bothers me the most too. I also feel so helpless when I know he's in pain and I can't do anything about it. > HER name is VIDYA KINI...Appears to be very good. I hear she is the > only one of her kind in this area. Her number is 939-5000 and she is > located on Central just off of Winkler near the Edison Mall (behind > the theatres off Winkler) I'll have to look into that - thanks for the name. > ever once in awhile. I have to admit I get scared while I'm in the > car with him. But if he thinks he can't handle it, he asks me to > drive. Buddy has the hand controls - he 'scoffed' at it when they were put in, but they have 'saved' us several times when his legs went into a spasm - at least he could keep control of our van. Before we got them I started to get very concerned that we were going to get into an accident (we had a couple of 'near misses') and I finally INSISTED he have the controls put in the van. The insurance company paid for it so cost wasn't a factor on our side. > tried it yesterday and it was great. Maybe now he can have a little > privacy. He said after this accident happened he doesn't have any > dignity left. Hahaha ... Buddy said the same thing .... (but then how much 'dignity' can you have left after having to wear those 'designer gowns' the hospital issues you PLUS having everyone in the world poking and proding at you all the time <grin>). > Yep, going to send him home with a 286 and an internal 2400 modem. > Only problem is, he really doesn't know that much about them. I told > him to tie into some BBS's in San Diego and look for the ones on > FIDONET. Then I guess he would find out if they carry this echo??? > and we can go from there??? GREAT !!! I hope that he is able to link into this echo - I'm sure that everyone hear will welcome him - and the support will be great for him. (Gee, it's nice to have such a wonderful mother .... ya' wanna' adopt us ?? <smile>). > Wish I would have known that before now. I would have brought Shawn > out and we could have had a cup of coffee or something. Thanks for > the offer. Thought I had your voice number but can't find it, however > Tina just sent a phone list over and I haven't looked at that yet. > Could be there. Wish you would have too, Arly .... Well, you can call anytime (our number should be in the new phone list). And come see us sometime if you get over this way - it's not really that long a drive from Ft. Myers. Take care now -- enjoy your visit and stay linked into this echo. Jean -- Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!371!33!Jean.Prophet Internet: Jean.Prophet@f33.n371.z1.fidonet.org
Joe.Chamberlain@f140.n150.z1.fidonet.org (Joe Chamberlain) (11/16/90)
Index Number: 11731 [This is from the Spinal Injury Conference] >> he's in misery. It's only been a few months since the accident and >> the surgery, and already he's saying he'll give it a couple of more >> years, but if they haven't found a way to help him then he doesn't >> want to live. Breaks my heart to hear this, he's only 29. This is a normal post accident depression. I have been in a chair for over 30 years and keep saying the same thing. I still plan on giving them a few more years. The psychology of the SCI person is such as to be very encouraging however. We as a lot are risk takers and willing to take chances. This penchant makes it easy for us to consider new ideas and seek employment. If he can get involved with other individuals in similar circumstances he will see the future is not all that bleak. Right here on this echo we have people in all types of situations and a wide variety of employment situations. Computer operators, teachers, writers, and counselors are just a few. The best advice is to love him and prod him into getting a job and stop feeling sorry for himself. I think the best method is to be a benevolent s.o.b. -=joe=- -- Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!150!140!Joe.Chamberlain Internet: Joe.Chamberlain@f140.n150.z1.fidonet.org