Sheila.Fava@f3.n157.z1.fidonet.org (Sheila Fava) (11/21/90)
Index Number: 11949
[This is from the Rare Disease Conference]
Bill, I have another request: I have a friend whose 5-year-old son
-MAY- have Fragile X Chromosome Syndrome. She has been given answers
like, "Uh...er....I don't know." until she is at her wit's end. This is
the first I heard of her plight...I thought everything was under
control.
Nicholas (the 5-Year Old) has had some intervention. What she needs is
some -prestigeous- addresses (Medical Centers? Teaching Hospitals?) to
help her AND Nicholas.
Can you assist here with an address? Some addresses? I'd really
appreciate the help and I know she would.
She and Nicholas are both living in Nevada at this time. Thanks in
advance.
---Sheila.
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