Ron.Portnoy@f3.n157.z1.fidonet.org (Ron Portnoy) (11/21/90)
Index Number: 11955 [This is from the Rare Disease Conference] Anybody out there hear of this diagnosis. We have a 10 year old girl born with this syndrome, but as you can guess there is not a lot of material to read and what there is is outdated. -- Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!157!3!Ron.Portnoy Internet: Ron.Portnoy@f3.n157.z1.fidonet.org
Butch.Walker@p0.f3.n157.z1.fidonet.org (Butch Walker) (11/21/90)
Index Number: 11956 [This is from the Rare Disease Conference] Ron have you tried N.O.R.D.? (National Organization for Rare Disorders). They can be reached at 1-800-999-NORD * Via ProEdit 3.2R -- Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!157!3.0!Butch.Walker Internet: Butch.Walker@p0.f3.n157.z1.fidonet.org