[misc.handicap] Way too expensive!

Linda.Iverson@f10.n130.z1.fidonet.org (Linda Iverson) (11/28/90)

Index Number: 12012

[This is from the Silent Talk Conference]

Hi, Ross!
 
This is to acknowledge your message and say I had a lovely day Thanksgiving 
and hope you had a good nap.  I can't say any more any better than 
what you said.  After reading messages here and in Abled, it seems 
that no disability is free from expense, and often the end-user has 
no way to get the very thing that would change his life by providing 
more independence.  It's a bit of a paradox that the State often does 
buy equipment and sometimes very expensive stuff and provide it to 
someone, but that same State often won't buy some little relatively 
inexpensive thing!  All of this is frustrating, and you know what else 
makes me really angry?  These programs for kids where they "pretend" 
to have a disability--temporarily blindfold a child so he can see what 
it's like to be blind, have a kid sit in a wheelchair for an few minutes, 
etc.  All that does is convince the kid the disability is just as bad 
as they thought, and probably worse.  If I want to know how a person 
does something I'll ask.  Anyway, let's say I sat in this wheelchair. 
 If it really got tough I know I can get out.  If you have a permanent 

disability you live with it and find alternative ways to do things.
 
Well, enough; you'll probably have to take a nap again.  Now, let's 
see if we can find a way to get all of us the devices we need!
 
Take care!
 
Linda
 

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collins@iastate.edu (Collins Alvin Gene) (12/01/90)

Index Number: 12080

As you said, it is indeed "a bit of a paradox" what devices some states will 
and will not purchase to help a disabled person.  In my own case, the state 
Commission for the Blind would not purchase any special computer 
addaptive equipment while I was attending classes at Control Data.
It was only after I was employed at ISU that thay decided to help with
addaptive equipment.  I can sort of understand their reasoning, but the
computer sure would have come in handy during my job search.  Not to mention
the fact that it would have looked very impressive on my resume` to be
able to say that I owned and was using my own microcomputer.  But enough of
this rambling for now.  

Talk to you later!
Gene Collins (collins@iastate.edu)

James.Womack@f14.n300.z1.fidonet.org (James Womack) (12/04/90)

Index Number: 12165

[This is from the Silent Talk Conference]

I believe the purpose of having kids pretend to be disabled is to sensitize 
them to disabled peers. The alternative is to have kids ignorant of 
their disabled peers and consequently mock and ridicule them. I think 
the pretend program helps kids to get a better understanding and respect 
for what disabled people endure as a matter of day to day life but 
would beat the unprepared down to the ground if faced with it suddenly. 
It is a good idea, probably needs to be handled a bit better, but people 
like you and I are whatis needed to help those people help. The ones 
who set up these programs. They could use our positive input.

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Linda.Iverson@f10.n130.z1.fidonet.org (Linda Iverson) (12/21/90)

Index Number: 12535

[This is from the Silent Talk Conference]

Hi, James!
 
Well, I'm not sure I completely agree with your position on the kids 
with no disabilities pretending they have one.  I see what you're saying 
and guess I agree overall.  If the people who plan the programs would 
come to us with disabilities and ask how we do things and what can 
we share to make the experience more real I could agree to that.  However, 
generally, and I realize there are exceptions to every rule, they don't 
ask us.  When I lived in North Dakota, a guy with cerebral palsy had 
begun a program where people with different disabilities would go and 
talk to schoolchildren.  However, for some reason--probably money--the 
real people were replaced with volunteers bringing puppets.  Well, 
even if a volunteer is familiar with a disability they can spout "facts" 
as they have heard them, but they can't recount personal experiences. 

 I don't recall ever being teased in school--maybe I forgot.  I'm not 
saying it doesn't happen, but I believe the parents' should be educated 
ahd have a good attitude about their child's disability so that child 
will already be strong in his self-image by the time he gets to school. 

 I know some blind people who won't bring braille books or magazines 
to bus terminals, doctors' offices, etc., because they know people 
will stare.  Well, I figure that's their problem.  I would rather read 
than sit and get bored.  Occasionally I've gotten into some interesting 
conversations because someone asked me about braille.  Anyway, good 
point, and I think we all have to look for ways to let groups know 
we're willing to share our knowledge.
 
Take care,
 
Linda
 

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