wtm@bunker.shel.isc-br.com (Bill McGarry) (01/17/91)
Index Number: 13005
This information is from the National Organization for Rare
Diseases's database on Compuserve. NORD is an organization that
specializes in information on rare diseases and will put you in contact
with other people or parents of children with the same disease or
disorder. Their address is:
The National Organization for Rare Disorders (NORD)
P.O. Box 8923
New Fairfield, CT 06812 (USA)
Phone: (800) 999-NORD
(In CT): (203) 746-6518
NORD has information on some 500 rare disorders and also has
information on orphan drugs.
NORD can also be reached on Compuserve.
I got this information during the summer of 1990 and
NORD last updated it in 1989 so it may have been updated since
then (sorry, Compuserve charges add up quickly so I can't do
another search). Contact NORD for more up to date information.
For information on experimental surgery for Meniere Disease contact:
Dr. Margareta Moller
Presbyterian University Hospital, Room 9402 PUH
230 Lothrup Street
Pittsburgh, PA 15213
(412) 624-3376
Ear Research Foundation
Dept. P, 1921 Floyd St.
Sarasota, FL 34239
For more information on Meniere Disease, please contact:
National Organization for Rare Disorders (NORD)
P.O. Box 8923
New Fairfield, CT 06812
(203) 746-6518
NIH/National Institute of Deafness & Other Communication Disorders (NIDCD)
9000 Rockville Pike
Bethesda, MD 20892
(301) 496-5751
The E.A.R. Foundation
ATTN: Meniere's Network
2000 Church Street
Nashville, TN 37236
(615) 329-7807 (Voice & TDD)
Vestibular Disorders Asociation
1015 22nd Avenue, D-230
Portland, OR 97210-3079
(503) 229-7348
American Tinnitus Association
P.O. Box 5
Portland, OR 97207
(502) 248-9985
Ear Research Foundation
Dept. P, 1921 Floyd St.
Sarasota, FL 34239