[misc.handicap] M.E./Chronic Fatigue Syndrome

thorntn@ccu.umanitoba.ca (Duncan Peter G. Thornton) (02/04/91)

Index Number: 13369

Hi!  My name's Duncan Thornton, and _my_ handicap is Chronic
Fatigue Syndrome.

Chronic Fatigue Syndrome is also called M.E., especially in 
the Britain (stands for Myalgic Encephalomyelitis), Chronic
Epstein-Barr Viral Syndrome, Yuppie 'Flu, and about a dozen
other things.

The main sympton is debilitating mental and physical fatigue;
in its acute phase it leaves you bedridden.  Starting points
for a diagnosis are that fatigue has to reduced your level of
activity by at least fifty percent for at least six months,
and all the other obvious causes have to have been ruled out.
Secondary symptons include depression, muscle pains, and a
dozen other things that some C.F.S. people get and some
don't.

The cause is still unknown, and there is no real effective
treatment.  Many people with C.F.S. have it for years; few
people ever make a complete recovery.

Although it's becoming more widely known (One of the Golden
Girls got it, and there was a Newsweek feature on it before
Christmas), many doctors still don't know about it, or refuse
to believe in it (it's all in your head, you're just
depressed, lazy,burnt-out, etc.).

So are there others out there with C.F.S?  Or with friends or
family who have it?  Since it's 'new', and there's so much
very basic research still being done, I'm hoping there are
others out there with whom to share information or advice.

Duncan Thornton           |      In the 'Nineties, it will become cool
thorntn.@ccu.umanitoba.ca |                  to be tired.