Tandy.Way@f514.n100.z1.fidonet.org (Tandy Way) (03/02/90)
Index Number: 7039
hello all I would like to introduce myself formally. I am not new to
this message base but for the most part been a lerker since I had no
way until now to read and reply off line and reading and replying
online was a real drag. I am blind age 43 married wife is in a
wheelchair. until lasst june I worked 18 years for social security.
they made up some false charges as an excuse and fired me. I have
drawn unemployment since then and the low life's even tried to stop me
from that. I won my case at the merrit systems protection board in
atlanta last september but the low life"s even though the judge said
over and over again in her decission "the agency has failed to prove
their case" are still appealing it. I guess they think they can drive
me in to the ground and out on the street where I will say uncle. I am
waiting the appeal results. I can use the emotional support of this
group to get me through this. My emotions have gone through a roller
coaster and several times I have given thought to "life termination" I
have been computing for 9 years or more and ran a bbs for about 8
years. if the finances get back to normal I plan to put up my bbs
again. I have sort of made myself a specialist of telecommunications so
if I can help anyone here let me know. I am using pc pursuit and can
help folks with that too. they have a special handicapped discount
where you get 90 hours for $30 a month. there are special programs to
help youwith the dialing chors too. I hope to get some mail from the
folks here.
tandy
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!100!514!Tandy.Way
Internet: Tandy.Way@f514.n100.z1.fidonet.orgEllen.Leiserson@f618.n261.z1.fidonet.org (Ellen Leiserson) (03/16/90)
Index Number: 7190
This is a message typed by Ellen Leiserson from Joel Myerberg. I'm
learning about bulletin boards but I have to type with a mouth
stick, therefore I'm very slow. Does anyone have any suggestions
to make the process speedier?
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!261!618!Ellen.Leiserson
Internet: Ellen.Leiserson@f618.n261.z1.fidonet.orgAlan.Hess@f1000.n261.z1.fidonet.org (Alan Hess) (03/16/90)
Index Number: 7192
In a message of <Feb 20 15:37> Ellen Leiserson (1:261/618@fidonet) writes:
EL:>This is a message typed by Ellen Leiserson from Joel Myerberg. I'm
EL:>learning about bulletin boards but I have to type with a mouth stick,
EL:>therefore I'm very slow. Does anyone have any suggestions to make the
EL:>process speedier?
EL:>
Using an offline reader, while not speeding up your typing, will allow you to
compose your messages offline, without the guilty feeling you get when you
think you are tying a board up too long. I see you called a board in net 261,
therefore you may be local to my board at 301-655-4708. I carry several
medical related areas in addition to this one, and offer offline reading with
Opus Message Kit. You may want to give it a try. *adh*
P.S. to all - sorry for the blatant bbs ad, but I thought it would be a helpful
suggestion.
--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!261!1000!Alan.Hess
Internet: Alan.Hess@f1000.n261.z1.fidonet.orgWilliam.Hubbs@f9.n393.z1.fidonet.org (William Hubbs) (03/22/90)
Index Number: 7242
Hello, everyone, My name is William and I run a new board that is starting
in Denton, TX. Besides being a new SYSOP, I'm a senior computer science
major at UNT (University of North Texas.) I am blind, and to access
the computer I'm currently using an Echo PC and the Soft Vert screen
access package from TSI (I'm about to update to flipper very soon though.)
I heard about this echo from Marda Anderson, and decided that it is
one that I definitely want to carry on this board!!
Looking forward to telecomm'ing with all of you!!
William
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!393!9!William.Hubbs
Internet: William.Hubbs@f9.n393.z1.fidonet.orgSteve.Gomes@f809.n104.z1.fidonet.org (Steve Gomes) (05/31/90)
Index Number: 8532
[This is from the Silent Talk Conference]
hi i just wanted to check if this echo was alive and well. I am blind
and hard of hearing and am looking for a device that will turn on house
current when it picks up sound. thanks
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!104!809!Steve.Gomes
Internet: Steve.Gomes@f809.n104.z1.fidonet.orgMarda.Anderson@f150.n321.z1.fidonet.org (Marda Anderson) (07/18/90)
Index Number: 9211
Hi, Richard! Nice to see you on the echo. Yes, it's the same Marda
Anderson. I'll be looking forward eagerly to your net mail message. Say
hi to Martha too. Talk to you later. Time's almost up. Bye.
marda
--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!321!150!Marda.Anderson
Internet: Marda.Anderson@f150.n321.z1.fidonet.orgThomas.Zabelsky@p0.f10.n137.z1.fidonet.org (Thomas Zabelsky) (07/24/90)
Index Number: 9457
Hi all,
My name is Tom Zabelsky, I contracted Polio back in
1950, at the age of 5 years. At first my whole body was
effected, except for 25% of my hearing. I was paralyzed, and
in an Iron lunge for almost 8 months. One great day,I moved
my little finger, then a few weeks later two more fingers,
and so on. I have about 35% to 40% return of my muscles, 100%
of my eye site, and 100% of my hearing.
Life's been pretty tuff through the years, but thats the
way life gos. All in all, I really enjoy living, even if it
has to be in a wheelchair. I'm glad to be alive.
So if there are any post polios out there, please leave
me message. Come to think of it, I would like to hear from
anybody, who would like to leave me some mail.
Thank you
Tom Zabelsky Sarasota, Fl.
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!137!10.0!Thomas.Zabelsky
Internet: Thomas.Zabelsky@p0.f10.n137.z1.fidonet.orgAdrienne.Barhydt@f778.n115.z1.fidonet.org (Adrienne Barhydt) (08/10/90)
Index Number: 9684
I was diagnosed 7 years ago. It looks like my experience was the
opposite of yours. I was diagnosed almost before I knew anything
was wrong. I was experiencing some strange things that for the
most part weren't too upsetting - strange sensations, ankle clonus
that I just thought was a weird reaction to stress. Then one day I
woke up with double vision. That got me to the doctor where I got
the "it's just stress" line. My boss, of all people, told me that
was not an acceptable diagnosis. His wife has a rare disease and
went through the "it's all in your head" nonesense, so he advised
me not to accept that kind of garbage.
My more leisurly examination with a different doctor resulted in
her telling me to see a neurologist. The neurologist at my first
visit said it was either a tumor on my spine or MS and if it was a
tumor we would know real quick. It wasn't a tumor. At the time I
was happy about that. Little did I know what was coming. Anyhow,
I soon showed up at the neurologist's office with optic neuritis
and trouble walking along with the strange sensations and ankle
clonus. The double vision only lasted a few hours and hasn't come
back so it is not an "official" MS symptom but I had enough for my
diagnosis.
How is it for you not having a diagnosis? I've heard a lot of
people say that it's pretty hard for them. Do you get hit with the
"it's all in your head" line a lot?
I have a bunch of different symptoms but it's the fatigue that
really gets to me and limits me in so many ways. I get wiped out
doing so little now, that it's too easy to imagine getting wiped
out doing absolutely nothing.
I have shoes that work well for me but I still can't walk much. I
get very, very fatigued on just a few steps. I have an ankle brace
(light weight plastic thingy) for foot drop and I need my shoe to
hold it on so I can't go barefoot, but thanks for your suggestions.
It is important to figure out what works for you.
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!115!778!Adrienne.Barhydt
Internet: Adrienne.Barhydt@f778.n115.z1.fidonet.orgAaron.Feldman@f204.n260.z1.fidonet.org (Aaron Feldman) (09/13/90)
Index Number: 10345
Thank you Betty for your warm welcome. I am 31 years old and have been
diagnosed w/ MS for the bast 9-10 years. that is a long story. Went
through a period when I was a student of being sent to doctor to doctor
to diagnose my "hysterical blindness" and then finally a neurologist
took pity on me, did a real through in-hospital exam, and made the
diagnosis that literally saved my sanity. For me that it the hardest
part of this disease..others not understanding becasue you "look healthy".
Also some people hear the word "virus" and think yes must be related
to AIDS!! I understand what you mean looking around at others and I
realize that many people have it worse but that does not give my any
relief--maybe guilt perhaps. Thanks for answering and let me know a
little about you. I really am shy and this is taking a major effort
so I really thank you!! Shalom (Peace) Aaron
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!260!204!Aaron.Feldman
Internet: Aaron.Feldman@f204.n260.z1.fidonet.orgFrank.Whitney@f1000.n261.z1.fidonet.org (Frank Whitney) (09/18/90)
Index Number: 10425
>major effort so I really thank you!! Shalom (Peace) Aaron
Welcome to the echo, my wife has MS and she's had many of the problems
that go with her disease. It took over 10 years of going to doctors
before they finally gave her a diagnosis. They just kept telling her
that it's only in your mind. Unfortunately, this has left deep scars
giving her much self doubt. It's really a shame the way many people
think that she and others with MS are trying to pull a fast one. At
times it can be a curse having a disease where there are no outward
symptoms. When she was finally told that she had MS her psychiatrist
said that "he thought that she had had MS all along" needless to say
my wife reacted quite immediately and slapped him. He was a good
friend and she felt betrayed because her doctors had lied to her for
so long. He understood and helped her try to adjust if there is such
a thing. She was blind in one of her eyes but she never knew it
until she went to the doctor and he asked her when she had experienced
being blind in her right eye. Most of her problems are fatigue and
vision related. One time she saw three cars where there was only one
and sometimes the yellow median turns into a Y. Needless to say she
doesn't drive any more but that is another restriction that she and I
now have to live with. I hope that things go well for you now and in
the future.
Frank.
-- Via Opus Msg Kit v1.01
--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!261!1000!Frank.Whitney
Internet: Frank.Whitney@f1000.n261.z1.fidonet.orgBill.Koppelmann@f810.n104.z1.fidonet.org (Bill Koppelmann) (09/20/90)
Index Number: 10545
Aaron, it is possible that we may come from different philosophical
backgrounds when it comes to our mindset on the topic of blindness.
I'm under the impression that the book you mentioned is a book that
reflects the thoughts of the American Council of the Blind. Please
don't get me wrong, while I'm an NFBer, I'm not a radical about it, but
do feel that I can't really understand many of the stands that the ACB
takes. I'm not in any way trying to start a quarrel here, but it is
important that we be able to exchange views here, I believe. Anyway,
do set me straight on the philosophy of the book. I should tell you
that I do feel that society could be much more supportive than it is,
but I am the one with the power, I feel that it is me that allows the
thoughts of others to be either building blocks, or barriers. I know
that in my life, I've given far too much power to others, and while
blaming would be easy, it is much better for me to realize that I can
just do differently in this moment what didn't work the last time.
Shalom also to you. Bill.
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!104!810!Bill.Koppelmann
Internet: Bill.Koppelmann@f810.n104.z1.fidonet.orgAaron.Feldman@f204.n260.z1.fidonet.org (Aaron Feldman) (09/21/90)
Index Number: 10565
Bill, I guess I really don't have a philosopopy regarding
disabilities. You are right you and I and others are the power. The
premsie oif the book I mentioned was that blindness is as limiting as it
is dicated by the person within. some people born deaf e.g., don't
consider themselves as disabled/different. It may be *we* that are
different from them. My philosophy is that we each are unique human
beings with distinst talents, attributes and also limitations. For some
these showdd, e.g. blind, paralzed; for some they may be invisable e.g.
the deaf, mentally ill, developmentally disabled. Then again the person
that is so rigid and self-consumed and unaware of others' plights has
their own disability. Getting back to the book it reminded me of a
friend who works for the VA and he is constantly finding that he must
keep his caseroll high to insure his job..this is done at times if the
people involved (clients) need his "help" or not. Within any group
including and especially the poor their are people who amke money or who
have a vested self interest in keeping these groups labled as such. I
hope this clarifies and not muddles further. Shalom, aaron
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!260!204!Aaron.Feldman
Internet: Aaron.Feldman@f204.n260.z1.fidonet.orgBill.Koppelmann@f666.n104.z1.fidonet.org (Bill Koppelmann) (09/21/90)
Index Number: 10598
Aaron, thanks for clarifying these issues for me. I think I'm
learning that I can really rely on you to see things as I do where
the disability scene is concerned.
I'm wondering if you have any thoughts concerning schools for the
blind and their value. I have still to figure out whether I am
better off to have gone to a school for the blind or not. Some of
your thoughts on this (and anyone else reading this) would be most
appreciated. p.So that yyou will get a better picture of the
situation, I went to school in the fifties and sixties.
Shalom, Bill K.
--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!104!666!Bill.Koppelmann
Internet: Bill.Koppelmann@f666.n104.z1.fidonet.orgRobert.Katz@p2.f223.n151.z1.fidonet.org (Robert Katz) (09/21/90)
Index Number: 10606
In a message to Robert Katz <18 Sep 90 21:01:00> Robert Bowes5Th wrote:
RB> I have Epilepsy & it was hard adjusting to Austin
RB> because of it, also people would not except me once I told them I
RB> had Epilepsy because they thought it was
RB> a disease instead of a disability.
When I was in 6th grade our substitute teacher had a seizure and all the
other kids freeked out but I went up to try to help him. The kids thought I
was the weird one. I couldn't figure out why? After he came out of it he
thanked me and I felt good. Made the other kids feel real low. Served them
right! Ignorance of disabilites is as bad as racesim. No place for it our
world. Sometimes I wonder if we will ever climb out of the dark ages. Are
you taking medication? Does it help? Keep your chin up and the 'ell with
stupid people. Later
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!151!223.2!Robert.Katz
Internet: Robert.Katz@p2.f223.n151.z1.fidonet.orgDonna.Siren@p2.f8.n396.z1.fidonet.org (Donna Siren) (09/27/90)
Index Number: 10652
RK> When I was in 6th grade our substitute teacher had a seizure and all
RK> the
RK> other kids freeked out but I went up to try to help him. The kids
RK> thought I
RK> was the weird one. I couldn't figure out why? After he came out of it
RK> he
RK> thanked me and I felt good. Made the other kids feel real low. Served
RK> them
RK> right!
If that teacher had convulsions, I can understand why those kids
reacted the way they did. I'm not saying that it's right, but I
can understand. I have petit mal epilepsy and all my close friends
know about it and my seizures don't bother them. My seizures are
very mild; I can be standing up and won't even fall. Although I've
had seizures for over twenty years, I've never witnessed a grand
mal seizure and I know if I ever did, I would be too frightened to
think clearly. I find that when many people here the word
"epilepsy", they automatically think "grand mal", and when they
find out what my seizures are like, then it's all right.
Donna
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!396!8.2!Donna.Siren
Internet: Donna.Siren@p2.f8.n396.z1.fidonet.orgAaron.Feldman@f204.n260.z1.fidonet.org (Aaron Feldman) (09/27/90)
Index Number: 10666
Boo means ??? translate please. My point is and you have a right to
disagree : What is a disability is determined by society. What is
reality is determined by the same i.e. consenual validation. If we lived
in a society where everyone was blind or deaf or whatever that would be
considered the *norm*. I have several hearing impaired friends, and
while it is true that now they have been exposed to and taken on the
biases of ABLED society and see themselves as different there was a time
in their past when this was not the case.
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!260!204!Aaron.Feldman
Internet: Aaron.Feldman@f204.n260.z1.fidonet.orgFloria.Antin@f304.n109.z1.fidonet.org (Floria Antin) (10/03/90)
Index Number: 10796
How can study be too rigorous? Too bad that they could not accomodate
you. At what level was it, elementary, high school or post high school.
in the NYC area there are yeshivoth for children with disabilities.
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!109!304!Floria.Antin
Internet: Floria.Antin@f304.n109.z1.fidonet.orgChris.Bitzane@p27.f3106.n124.z1.fidonet.org (Chris Bitzane) (10/03/90)
Index Number: 10806
BK> Aaron, when i logged on this board, i found to my dismay taht the
BK> sysop calls this echo "Disabled Users." Personally, I seem to like
BK> Abled much better. Not that I'm trying to hide anything, but as we
BK> already know that we are disabled, one would think that we wouldn't
BK> have to accentuate the negative all the time.
BK> Shalom, Bill.
Well, Bill, I don't like the term "disabled" myself, but to each
his own. I guess the better way to put it might be to say we face
more challenges than most. Disabled isn't always as universal a
term as we would like to think. I had to go through a big
adjustment when I finally got to the point where I couldn't hold a
regular job, and had to start getting SSD and asking for help from
other sources.
I don't consider myself "disabled." It's more like I have to do
things a little slower than others in the physical realm, but when
it comes to the mental aspect - watch out! I am far from disabled
there.
You might want to have a little chat with the Sysop and ask him to
change the way it is refered to on the board. Handicaps are just
that - something that makes you work harder, not something that
stops you (unless you let it).
Peace and Prosperity,
Chris
--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!124!3106.27!Chris.Bitzane
Internet: Chris.Bitzane@p27.f3106.n124.z1.fidonet.orgBill.Higgins@p17.f122.n249.z1.fidonet.org (Bill Higgins) (10/03/90)
Index Number: 10808
Hi Aaron,
Allow me to quote the letter you mailed on 25-Sep-90
AF> Bill, Now it is I that must ask for clarification. Is it a school for
AF> you that you are looking or schools for the blind in general.
AF> Unfortunaely i am not familiar with any. I have a certain ambivilance
AF> about these matters and I don't mean just schools for people with
AF> certain diabilites (blind, hearing impaired etc) there are also
AF> schools that are all male or female or pertianing to certain religious
AF> groups. I believe the first question the individual must answer is
AF> what do I desire in a school? And then where can I best get what I
AF> want? In my own case I wanted very much to go to a Yeshiva (religious
AF> school) to learn more;however, I was denied admittance being told I
AF> could not meet the rigors.
Aaron, I believe you should have a talk with a state authority as to your
deniel. If you wish to go to a Yeshiva then it should be your right to do
so despite what others may say reguarding your endurance or capabilities.
This sort of blatant disreguard for you rights should NOT be tolerated by
you and I will tell you that the law won't put up with it either. Like my
self you should be allowed to improve your self by going to school (or
Yeshiva), you are no different than anyone else in the world. Self
improvement expands you horizons and gives you higher self esteem, as well
other around you will hold with higher respect (particularly if this
Yeshiva is to prepare you to become a rabbi).
AF> I really believed though that was the best
AF> place I could learn what I needed at that point in my life. It can be
AF> helpful being around others that have the same problems e.g., support
AF> groups (Make Today Count for example); It is your peers that can
AF> understand you in a way an "outsider" would never..could never. But
AF> the issue about school I believe must be to be succinct: What is it
AF> that I want to know? To learn to BE! Shalom, Aaron
AF>
Just remember what I've said and please ignore that groaner of a joke I
left on my last msg. I didn't realize this one was next on the system.
Shalom, Bill
--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!249!122.17!Bill.Higgins
Internet: Bill.Higgins@p17.f122.n249.z1.fidonet.orgAaron.Feldman@f204.n260.z1.fidonet.org (Aaron Feldman) (10/05/90)
Index Number: 10881
Since this is a private Yeshiva I would not have a case. Hope you caught
my message about the rigors and as that is the case I suppose they have
legimate concerns. I know that someplace in the USA there might be a
Yeshiva that would take me but the old story is sometimes its *who* you
know that counts. As of this minute I don't know *whom*. Thanks for your
understanding Bill. BTW going to Yeshiva to be a rabbi is not the only
reason to go. It provides an intense opportunity to study your culture,
the Torah, Hebrew etc in a manner that can not be replicated on the
outside. I believe there is a sociological stsudy written about 5 years
ago called (papaphasing) The World of the Yeshiva. Sorry I don't
remember the author. Shalom, Aaron
--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!260!204!Aaron.Feldman
Internet: Aaron.Feldman@f204.n260.z1.fidonet.orgAnn.Kysor@f11.n203.z1.fidonet.org (Ann Kysor) (10/05/90)
Index Number: 10918
[This is from the Blink Talk Conference]
Hello, everyone!!! This is my first time on blink talk, so I'm
still learning the ropes. My husband dan gets on here all the
time, and I really enjoy hearing all the discussions. I also have
a guide dog, my 2nd, therefore the guide dog thing is of special
interest to me. I am currentlyunemployed, but hope to get
something going eventually. As for computers, it's mostly Greek to
me, although I'm in the process of learning not to be totally
freaked out by it all. Well, that's about it for now. Talk to you
all later, I hope. 73's for now from n6mtn signing clear.
--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!203!11!Ann.Kysor
Internet: Ann.Kysor@f11.n203.z1.fidonet.orgBill.Higgins@p17.f122.n249.z1.fidonet.org (Bill Higgins) (10/09/90)
Index Number: 10979
Hi Aaron,
Allow me to quote the letter you mailed on 01-Oct-90
AF> Since this is a private Yeshiva I would not have a case. Hope you
AF> caught my message about the rigors and as that is the case I suppose
AF> they have legimate concerns.
Having a disability can have a limiting effect in anything we do.
AF> I know that someplace in the USA there might be a Yeshiva that would take
AF> me but the old story is sometimes its *who* you know that counts. As of
AF> this minute I don't know *whom*. Thanks for your understanding Bill.
Is there publications that are soley dedicated to Jews like the Christian
Science Monitor for the Christians? If so they should have at one point or
another a mention of other Yeshiva's in the country. If worse comes to worse
then you should send out your own "feelers" and make sure they say that your
looking for a school that is accomodatating to your limits or needs. If that
fails, look into one in Canada or if your willing to go that far, look
overseas.
AF> BTW going to Yeshiva to be a rabbi is not the only reason to go. It
AF> provides an intense opportunity to study your culture, the Torah, Hebrew
AF> etc in a manner that can not be replicated on the outside. I believe ther
AF> is a sociological study written about 5 years ago called (papaphasing) Th
AF> World of the Yeshiva. Sorry I don't remember the author. Shalom, Aaron
AF>
It sound like the way your culture is taught is very different and
interesting. Maybe I should take a closer look, all I ever here of Jews
is in a historical sense and with no reference to culture. It's just a
passing thought, but wouldn't it be nice if it were mandatory that all
school students be exposed to the other cultures of the world before thei
ideals of them are set mostly for life?
Shalom, Bill
--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!249!122.17!Bill.Higgins
Internet: Bill.Higgins@p17.f122.n249.z1.fidonet.orgRobert.Johnson@p0.f451.n320.z1.fidonet.org (Robert Johnson) (11/06/90)
Index Number: 11537
[This is from the Chronic Pain Conference on Fidonet]
Hi Everyone!
This is to let you all know that The .\\ystical .\\adrigal of Killingly
Connecticut is now connected with the Chronic_Pain echo.
Reason being, the SysOp...me <<grin>>, has some serious knee problems that
I have had to deal with for a long time now, and am in constant pain, and
was hoping that maybe the good folks in here could possibly guide me in the
direction of dealing with the pain. Sometimes it's very manageable, at
other times I want to just cry like a 5 year old!
Sleeping is a major problem, and just about anything I do, directly
affects this stupid knee. On top of this problem, I have ruptured discs in
my back, that have had surgery twice. The second surgery has helped a great
deal, in that pain only occurs if I do something stupid...like lay flat on
my back or try to reach for something out of reflex too quickly.
Anyway...I have been dealing with my pain for quite a long time, and am
coming to wits end. Having four children, it's tough to say no to them,
when I am needed somewhere, or need to do something for them.
How do you folks deal with pain...other than drugs, I'd like to hear from
as many of you as possible, in hopes that maybe someone has an idea, that
will help me. Thanks in advance.
Bob
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!320!451.0!Robert.Johnson
Internet: Robert.Johnson@p0.f451.n320.z1.fidonet.orgJo.Kwok@f129.n700.z6.fidonet.org (Jo Kwok) (12/21/90)
Index Number: 12568
[This is from the Spinal Injury Conference]
My name is Jo, I lived in Hong Kong. I am 34 years old, singal man.
17 years ago I had an accident, and then I need to wheelchair bound
because I am a Quad C#5.
I am playing computer nearly one year. I typing with one finger of
my left hand and my right hand need to clip a ball pen.
I wish to share my experience to you or all.
Bye. See you later!
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!6!700!129!Jo.Kwok
Internet: Jo.Kwok@f129.n700.z6.fidonet.orgJean.Prophet@f33.n371.z1.fidonet.org (Jean Prophet) (01/18/91)
Index Number: 13035 [This is from the Spinal Injury Conference] > always ask myself is it worth it to stay another one or two > hours at a > party when I might be in bed for a week after. I always choose > to > leave a little early and allow myself to enjoy the next day. I think Buddy hasn't really accepted his limitations yet - however his determination to walk and move around and KEEP moving is what keeps him going (so the doctors told me). I do believe that he needs to accept what he can and cannot do though .... Prehaps in time he will learn to do that. Prehaps his injury is still 'too new' (1988 last surgery) ... Jean -- Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!371!33!Jean.Prophet Internet: Jean.Prophet@f33.n371.z1.fidonet.org
Joe.Chamberlain@f140.n150.z1.fidonet.org (Joe Chamberlain) (01/18/91)
Index Number: 13047
[This is from the Spinal Injury Conference]
>> There a some special keyboards available for IBM
TThe keyboard I saw was by the In Touch Systems and uses
a wand. It is a miniture keyboard which allows you to use it
just like everyone else, with little strength or dexterity.
JK> physical exercise for us. When I discharge to home, I stop
JK> the physio until to this time. So ability of
JK> my movement is getting bad. You are a senior Quad
JK> would you like tell more me about this point of your experience.
I stopped doing exercises that I did when I was in the
hospital and started doing what helped me stay healthy. I
stretch each day as I get dressed and into the chair. I lift a
small weight while watching TV until my muscle hurts a little and
then I quit until the next day.
JK> ...and the nurse had not a time to help me turn back because
JK> that is a emergency hospital. And then I had a sore in
JK> my back and ankle area. After 40 days I changed to rehab
That is not good. YOU must tell them that they must turn
you and that it is very important. Sores can get very bad very
fast and they can kill you. You must make the nurses and doctors
understand that in the emergency hospital too.
JK> Do you know any new product of cushion in your state?
JK> Please tell me some stuff of cushion.
I think there are three good types of cushions. I use
the Jay cushion and it is a gel filled cushion that is good for
stopping sores. There is a cushion call the Roho which is air
filled and many people use it and think it is good. I used the
T-Foam cushion for many years and was happy with it and never had
a sore.
If you send me your mail address I will have information
mailed to you about each of the cushions. Hope this helps.
-=joe=-
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!150!140!Joe.Chamberlain
Internet: Joe.Chamberlain@f140.n150.z1.fidonet.orgJoe.Chamberlain@f140.n150.z1.fidonet.org (Joe Chamberlain) (02/01/91)
Index Number: 13289
[This is from the Spinal Injury Conference]
JK> The nurses had not the knowledge of protect skin in that time.
JK> Perhaps they understand now?
You must teach them everytime you go to the hospital.
You know more about protecting the skin than most nurses.
JK> I am interesting for T-foam cushion. Did you hear about "Sunmate"
JK> cushion?
I will have them send you information.
-=joe=-
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!150!140!Joe.Chamberlain
Internet: Joe.Chamberlain@f140.n150.z1.fidonet.orgEd.Dobie@f175.n120.z1.fidonet.org (Ed Dobie) (02/05/91)
Index Number: 13514
[This is from the Spinal Injury Conference]
HD->I've been using a roho for 4 1/2yrs and never had a sore.
HD->I've tried the Jays' but they hurt my butt (too bad I can
HD->feel it sometimes)
My daughter uses a Jay, and about two weeks ago had to do the thing she
hates the most, leave the chair for bed. I always push the jell back in the
middle between transfers, but it just seemed rather flat.
We mentioned this to our PT & chair rep. & he said the cushion had lost alot
of jell. (???) He asked if we noticed any white dust like material (which
we hadn't). But, he replaced the cushion with an overfilled version.
On another note. Recently there has been a thread on water & jell beds. We
had a nurse tell us that they used jell beds in the local hospital in ICU
for a while, that was untill they started to leak. Seems that the little
silicon balls where a little too much for the staff to skate across the
floor on. They left & the air & egg crates came back.
Ed
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!120!175!Ed.Dobie
Internet: Ed.Dobie@f175.n120.z1.fidonet.orgCarol.Cunningham@f10.n130.z1.fidonet.org (Carol Cunningham) (02/09/91)
Index Number: 13621
Dear Friends,
Just wondering if there are any others with OI or Osteogenesis
Imperfecta out there ? I am a 48 year old college grad with degree in
English who lives in Irving, TX. I have OI to a severe degree having
never walked . By profession I am a private tutor working from my home
with students of all ages from kindergartners to adults. I dearly love my
profession. My interests include reading, current events, animals,
people, laughing, sport watching, etc. Would enjoy hearing from anyone
and especially any with OI.
Sincerely
Carol Cunningham
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!130!10!Carol.Cunningham
Internet: Carol.Cunningham@f10.n130.z1.fidonet.orgThe.Ranger@p0.f477.n104.z1.fidonet.org (The Ranger) (03/01/91)
Index Number: 13787
[This is from the Spinal Injury Conference]
Well I just noticed this echo on this system. It looks like most of
you are from back east away from the Rockies and the cold out here. I'm a
C5-6 Quad, 13 years post injury. As for the person wanting ideas about what
to teach those newly injured, the most important thing you can try to teach
them is to be creative. Working around obsticals is the most important
thing you can install in someone. We may all get there by differant
roughtes, but sooner or later we'll get there. So how many of the cord
injuries out there whent through Craig here in Denver? I'm fairly lucky and
haven't realy had any post injury trouble, few presser sores and the odd
stone but no biggie. I'm a incomplete break as I have limited sensation but
thats about it. If any one needs help in the computer area give me a yell
as Ive been involved with computers for the last 10+ years.
Terry Kline
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!104!477.0!The.Ranger
Internet: The.Ranger@p0.f477.n104.z1.fidonet.orgkarlfxgrp.fx.com (Karl Garcia) (03/07/91)
Index Number: 13847 In article <17938@bunker.UUCP> The.Ranger@p0.f477.n104.z1.fidonet.org writes: >Index Number: 13787 >to teach those newly injured, the most important thing you can try to teach >them is to be creative. Working around obsticals is the most important >thing you can install in someone. We may all get there by differant >roughtes, but sooner or later we'll get there. So how many of the cord I agree completely. I am a para 4 years post injury and have not found much that I couldn't do in some fashion or another... >injuries out there whent through Craig here in Denver? I'm fairly lucky and >haven't realy had any post injury trouble, few presser sores and the odd I also went through Craig. And after visiting the regional center out here at Santa Clara Valley Med Center, I can't say enough about the benefits of Craig. Of course that doesn't make much difference to 99% of the people reading this because they already have their injury and have had some rehab... I would be very interested to hear how many other netters went through Craig. I wonder how big a percentage Craig has of the people who have gone into computers. Karl Garcia KG 'When I think back on all the crap I learned in highschool...' 'DO NOT, repeat, DO NOT blow the hatch!' Karl Garcia 'Roger....hatch blown!' karl@fx.com
Lois.Briggs@p0.f89.n129.z1.fidonet.org (Lois Briggs) (04/11/91)
Index Number: 14719
[This is from the Blink Talk Conference]
Glad you interrupted. I am blind due to RP and am 49 years old, married
with three children, 24,21 & 18. I got interested in computers a couple
years ago so I could get back in the work force. I work from my home 20
hours a week for specialty advertisers in the Pittsburgh area. I like
it very much, but want to get into strictly word-processing. Right now
I prospect via the telephone for new customers and send out catalogs and
information. I like it, but two ywears of this is about enough. I'm
ready to move on. Talk to you later.
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Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!129!89.0!Lois.Briggs
Internet: Lois.Briggs@p0.f89.n129.z1.fidonet.org