LEMONL%CITADEL.BITNET@VM1.NoDak.EDU (Lisa Lemon) (06/28/91)
Index Number: 16471 My name is Lisa Lemon. I'm a new subscriber. I'm searching for information on twin studies. I have a set of twins one is "NORMAL" the other has Cerebral Palsey. I have seen features on news programs about twins like mine and have recently met a mother going through the same thing I am. I was wondering if you have any documentation that would be useful. I'm looking for anything I can find on CP or Twins with the problems mine have or ways to start a CP support group in South Carolina. I look forward to hearing from you on this subject or anything else you have to offer. Thank You
wtm@bunker.shel.isc-br.com (Bill McGarry) (06/28/91)
Index Number: 16472
I don't have any documentation on twins and CP. However,
a good place to start would be the:
United Cerebral Palsy Associations (UCPA)
UCP Research and Educational Foundation
66 East 34th Street
New York, NY 10016
(800) USA-1UCP
(212) 481-6300
They should also be able to give you information on support groups
in your area.
Another organization to contact would be NORD at:
The National Organization for Rare Disorders (NORD)
P.O. Box 8923
New Fairfield, CT 06812 (USA)
Phone: (800) 999-NORD
(In CT): (203) 746-6518
Also the Exceptional Parent magazine has a "Parent Search"
section. which publishes letters from its subscribers searching
for parents with similar experiences, information about specific
problems and resource information.
You must be a subscriber.
Exceptional Parent
P.O. Box 3000
Denville, NJ 07834
(800) 247-8080
(This is for subscriptions only)
Bill McGarry
(203) 337-1518
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