rock%lighthouse%pyrdc%wubios@uunet.UU.NET (Roger Rock Rosner) (10/29/89)
***************************************************************************
DEPARTMENTS - Table of Contents August 1989 - Vol 1, No 3
Opening - A change in direction
Distribution
Staff
***************************************************************************
A CHANGE IN DIRECTION
This issue of Washington HIV News marks the beginning of several changes.
The first change is that the publication schedule will change from bimonthly
to quarterly.
In this issue, we have printed in-depth reviews of the majority of the
protocols that are available in the Washington area. Unfortunately, it
takes a while for new protocols to get to the point where they are actively
recruiting participants. Despite the statistics which continue to show the
number of diagnosed AIDS cases increasing at an alarming rate, money is
getting tighter. Hiring of research doctors, scientists, lab technicians,
and research nurses has been slowed or stopped far below where staffing
levels need to be to continue a fast, active fight against HIV.
The decision by Congress to extend the AZT subsidy program, but not to fund
it, has diverted millions of dollars from research budgets to purchasing
AZT. The real catastrophe is that there are several drugs that appear to
demonstrate far more promise than AZT (in having the same or better
therapeutic effect with far fewer side effects), but large-scale testing of
them has been stymied for lack of funds.
Another change which we note with extreme regret is the death of Henry
Trevathan, Jr., Assistant Editor of Washington HIV News. Henry was an
example to all of us of a person LIVING with AIDS: his energy, his concern
for others, his attention to detail, and his support when things got mired
down in bureaucratic problems were essential for Washington HIV News to ever
come into being.
Henry himself tried protocol after protocol, extending our knowledge of HIV,
and was waiting for approval to begin yet another protocol when he died.
Even while bed-bound a week before his death, Henry was excited about having
the equipment installed in his computer that would enable him to link into
different computer systems around the country, so he could extend his
knowledge, and share his experience, strength, and hope with others.
Henry showed us that diligence, dignity, and a desire to fight for life are
powerful weapons against HIV. The magnitude of his loss can never be
properly expressed. We'll miss you, sweetheart!
It is tragic that there are still opportunistic infections associated with
AIDS that have no effective treatment. Research MUST continue on fighting
opportunistic infections, even as basic research against HIV itself
continues. As the anti-retrovirals like AZT, ddI, ddC, and others extend
the life spans of AIDS patients, that also gives time for the more obscure
opportunistic infections to attack. These must be effectively fought also.
If you have any comments or suggestions for ways to improve Washington HIV
News, or if you would like to contribute an article about a subject relating
to HIV, please call us at (202) 797-3590, or write to us at Washington HIV
News, c/o The Whitman-Walker Clinic, 1407 "S" Street, N.W., Washington, DC
20009.
***************************************************************************
Henry Lawrence Trevathan, Jr.
June 9, 1957 -- April 23, 1989
"Happily I think on thee, and then my state,
Like to the lark at break of day arising
From sullen earth, sings hymns at heaven's gate;
For thy sweet love rememb'red such wealth brings
That then I scorn to change my state with kings."
--Shakespeare
Sonnet XXIX
***************************************************************************
DISTRIBUTION
Washington HIV News is published four times a year entirely by volunteers,
and is distributed through the Whitman-Walker Clinic, and at several public
locations, without charge. However, each issue of Washington HIV News costs
about $1,500.00 to print, and is currently funded from private contributions
and grants. (Donations are gratefully accepted.)
Single copies of Washington HIV News are available on request; please call
and leave a message at (202) 797-3590. To be on a regular mailing list,
please fill out the form at the right. Because of the costs involved, a fee
must be charged to everyone except PWAs/PWARCs. The subscription rate is
$4.00/year ($1.00/issue); additional subscriptions are each $2.00/year
($0.50/issue).
_____________________________________________________________________
Name
_____________________________________________________________________
Institution (where applicable)
_____________________________________________________________________
Address
_____________________________________________________________________
City, State, and Zip
One yearly subscription (4 issues) = $ 4.00
____ additional subscriptions ($2.00 each) = ____________
Total (enclosed) $ ____________
Make checks payable to: Washington HIV News
Return this form to: Washington HIV News
c/o The Whitman-Walker Clinic
1407 "S" Street, N.W.
Washington, DC 20009
***************************************************************************
\\\ //\\ ///
\\\ ///\\\ /// Washington HIV News is endorsed by
\\\////\\\\/// the Whitman-Walker Clinic, although
\\// \\\// the content of this newsletter does
\/ \\\ \/ //\\ /// not necessarily reflect the
\\\ ///\\\ /// opinions of the Whitman-Walker
\\\////\\\\/// Clinic.
\\// \\\//
\/ \/
Editor-in-chief . . . . . . . . . . . . . Andrew Coile
Supervising Editor . . . . . . . . . . . Patt Hoffmann
Assistant Editor . . . . . . . . . . . . Henry Trevathan, Jr.
Technical Editor . . . . . . . . . . . . W. Howard Cyr
Administration . . . . . . . . . . . . . Ken Thomas
Photography . . . . . . . . . . . . . . . Suzanne Drake
Graphics . . . . . . . . . . . . . . . . Bryan Harrison
Contributing Editor . . . . . . . . . . . Kate Parker
Contributors . . . . . . . . . . . . . . Sally Breul
Rob Cole
Basil Vareldzis
Copyright (C) 1989 by Washington HIV News, all rights reserved. Although
great steps have been taken in an attempt to insure the accuracy of all the
information presented herein, the Washington HIV News, the staff that
produces it, the Whitman-Walker Clinic, or the various institutions and
personnel who provided us with information cannot be held responsible for
any damages, direct or consequential, that arise either from the use of this
material or due to any errors contained herein.
The issues raised by the subject of pursuing treatment for HIV infection are
not simple ones. EVERYONE CONSIDERING APPLYING FOR A PROTOCOL SHOULD FIRST
DISCUSS POSSIBLE TREATMENTS AND PROTOCOLS, IN DETAIL, WITH HIS/HER PRIMARY
CARE PHYSICIAN. Together, the patient and physician can carefully review
the different requirements presented for each protocol and make a decision.
When applying for a protocol, the most important thing to do is to ASK
QUESTIONS! This disease is so dynamic that protocols may change after press
time from the information presented here. The only way to know the latest
complete details is to ask questions. Most researchers do the best they can
with the knowledge they have, but they are human. Patients must feel free
to ask as many questions as they want to. The patient must be a willing and
informed participant in any protocol. Above all, it's the patient's life,
and that is who must deal with the consequences of medical decisions.
DEDICATED TO: LARRY EDWARDS, JIM AMADEI, MARIO RIVECCIO, AND PHIL MOSS.
***************************************************************************
Copyright (C) 1988,1989 by Washington HIV News, all rights reserved.
Permission is granted for non-commercial use only.phil@wubios.WUstl.EDU (J. Philip Miller) (11/20/89)
Forwarded message:
>From pyrdc!lighthouse!rock@uunet.UU.NET Tue Oct 24 19:16:02 1989
Date: Tue, 24 Oct 89 18:57:17 GMT-0500
From: pyrdc!lighthouse!rock@uunet.UU.NET (Roger Rock Rosner)
Message-Id: <8910242357.AA01290@ lighthouse >
To: phil@wubios, ddodell@stjhmc.fidonet.org
Subject: Washington HIV News: V1N3, 3/3
***************************************************************************
DEPARTMENTS - Table of Contents August 1989 - Vol 1, No 3
Opening - A change in direction
Distribution
Staff
***************************************************************************
A CHANGE IN DIRECTION
This issue of Washington HIV News marks the beginning of several changes.
The first change is that the publication schedule will change from bimonthly
to quarterly.
In this issue, we have printed in-depth reviews of the majority of the
protocols that are available in the Washington area. Unfortunately, it
takes a while for new protocols to get to the point where they are actively
recruiting participants. Despite the statistics which continue to show the
number of diagnosed AIDS cases increasing at an alarming rate, money is
getting tighter. Hiring of research doctors, scientists, lab technicians,
and research nurses has been slowed or stopped far below where staffing
levels need to be to continue a fast, active fight against HIV.
The decision by Congress to extend the AZT subsidy program, but not to fund
it, has diverted millions of dollars from research budgets to purchasing
AZT. The real catastrophe is that there are several drugs that appear to
demonstrate far more promise than AZT (in having the same or better
therapeutic effect with far fewer side effects), but large-scale testing of
them has been stymied for lack of funds.
Another change which we note with extreme regret is the death of Henry
Trevathan, Jr., Assistant Editor of Washington HIV News. Henry was an
example to all of us of a person LIVING with AIDS: his energy, his concern
for others, his attention to detail, and his support when things got mired
down in bureaucratic problems were essential for Washington HIV News to ever
come into being.
Henry himself tried protocol after protocol, extending our knowledge of HIV,
and was waiting for approval to begin yet another protocol when he died.
Even while bed-bound a week before his death, Henry was excited about having
the equipment installed in his computer that would enable him to link into
different computer systems around the country, so he could extend his
knowledge, and share his experience, strength, and hope with others.
Henry showed us that diligence, dignity, and a desire to fight for life are
powerful weapons against HIV. The magnitude of his loss can never be
properly expressed. We'll miss you, sweetheart!
It is tragic that there are still opportunistic infections associated with
AIDS that have no effective treatment. Research MUST continue on fighting
opportunistic infections, even as basic research against HIV itself
continues. As the anti-retrovirals like AZT, ddI, ddC, and others extend
the life spans of AIDS patients, that also gives time for the more obscure
opportunistic infections to attack. These must be effectively fought also.
If you have any comments or suggestions for ways to improve Washington HIV
News, or if you would like to contribute an article about a subject relating
to HIV, please call us at (202) 797-3590, or write to us at Washington HIV
News, c/o The Whitman-Walker Clinic, 1407 "S" Street, N.W., Washington, DC
20009.
***************************************************************************
Henry Lawrence Trevathan, Jr.
June 9, 1957 -- April 23, 1989
"Happily I think on thee, and then my state,
Like to the lark at break of day arising
From sullen earth, sings hymns at heaven's gate;
For thy sweet love rememb'red such wealth brings
That then I scorn to change my state with kings."
--Shakespeare
Sonnet XXIX
***************************************************************************
DISTRIBUTION
Washington HIV News is published four times a year entirely by volunteers,
and is distributed through the Whitman-Walker Clinic, and at several public
locations, without charge. However, each issue of Washington HIV News costs
about $1,500.00 to print, and is currently funded from private contributions
and grants. (Donations are gratefully accepted.)
Single copies of Washington HIV News are available on request; please call
and leave a message at (202) 797-3590. To be on a regular mailing list,
please fill out the form at the right. Because of the costs involved, a fee
must be charged to everyone except PWAs/PWARCs. The subscription rate is
$4.00/year ($1.00/issue); additional subscriptions are each $2.00/year
($0.50/issue).
_____________________________________________________________________
Name
_____________________________________________________________________
Institution (where applicable)
_____________________________________________________________________
Address
_____________________________________________________________________
City, State, and Zip
One yearly subscription (4 issues) = $ 4.00
____ additional subscriptions ($2.00 each) = ____________
Total (enclosed) $ ____________
Make checks payable to: Washington HIV News
Return this form to: Washington HIV News
c/o The Whitman-Walker Clinic
1407 "S" Street, N.W.
Washington, DC 20009
***************************************************************************
\\\ //\\ ///
\\\ ///\\\ /// Washington HIV News is endorsed by
\\\////\\\\/// the Whitman-Walker Clinic, although
\\// \\\// the content of this newsletter does
\/ \\\ \/ //\\ /// not necessarily reflect the
\\\ ///\\\ /// opinions of the Whitman-Walker
\\\////\\\\/// Clinic.
\\// \\\//
\/ \/
Editor-in-chief . . . . . . . . . . . . . Andrew Coile
Supervising Editor . . . . . . . . . . . Patt Hoffmann
Assistant Editor . . . . . . . . . . . . Henry Trevathan, Jr.
Technical Editor . . . . . . . . . . . . W. Howard Cyr
Administration . . . . . . . . . . . . . Ken Thomas
Photography . . . . . . . . . . . . . . . Suzanne Drake
Graphics . . . . . . . . . . . . . . . . Bryan Harrison
Contributing Editor . . . . . . . . . . . Kate Parker
Contributors . . . . . . . . . . . . . . Sally Breul
Rob Cole
Basil Vareldzis
Copyright (C) 1989 by Washington HIV News, all rights reserved. Although
great steps have been taken in an attempt to insure the accuracy of all the
information presented herein, the Washington HIV News, the staff that
produces it, the Whitman-Walker Clinic, or the various institutions and
personnel who provided us with information cannot be held responsible for
any damages, direct or consequential, that arise either from the use of this
material or due to any errors contained herein.
The issues raised by the subject of pursuing treatment for HIV infection are
not simple ones. EVERYONE CONSIDERING APPLYING FOR A PROTOCOL SHOULD FIRST
DISCUSS POSSIBLE TREATMENTS AND PROTOCOLS, IN DETAIL, WITH HIS/HER PRIMARY
CARE PHYSICIAN. Together, the patient and physician can carefully review
the different requirements presented for each protocol and make a decision.
When applying for a protocol, the most important thing to do is to ASK
QUESTIONS! This disease is so dynamic that protocols may change after press
time from the information presented here. The only way to know the latest
complete details is to ask questions. Most researchers do the best they can
with the knowledge they have, but they are human. Patients must feel free
to ask as many questions as they want to. The patient must be a willing and
informed participant in any protocol. Above all, it's the patient's life,
and that is who must deal with the consequences of medical decisions.
DEDICATED TO: LARRY EDWARDS, JIM AMADEI, MARIO RIVECCIO, AND PHIL MOSS.
***************************************************************************
Copyright (C) 1988,1989 by Washington HIV News, all rights reserved.
Permission is granted for non-commercial use only.
--
J. Philip Miller, Professor, Division of Biostatistics, Box 8067
Washington University Medical School, St. Louis MO 63110
phil@wubios.WUstl.edu - Internet (314) 362-3617 phil@wubios.wustl - bitnet
uunet!wucs1!wubios!phil - UUCP C90562JM@WUVMD - alternate bitnet