[sci.med.aids] HIV Status Policy

Annoyed.As.Hell@p0.f69.n154.z1.fidonet.org (Annoyed As Hell) (08/16/90)

Recently, I helped a friend get admitted into a Milwaukee Hospital, who is 
diagnosed with AIDS.
 
30 seconds after we sat down in the waiting room, the receptionist called into 
patient admitting, and, in a regular voice audible throughout the waiting room 
o any and all others present "Acquired Immune Deficiency Syndrome-Peunomonia."
 
Additionally, his room has in big black and white letters "Blood & Secretion 
Precautions" for all to see, including visitors and other patients on the 
entire floor!
 
Isn't there some way Doctors, Nurses, and Medical Professionals could refer to 
these patients and this diagnosis, without alarming everyone else within 
earshot?  Couldn't a code, or number, or even a red piece of tape on the 
patients door be used to alert medical personnal of precautionary conditions?  
I cannot tell you how many times I have sat in the doctors office of a major 
physician here in town (with numerous AIDS patients) while names, conditions, 
symptoms or tests (Such as T-cell counts) are spoken of freely and openly.
 
WHAT EVER HAPPENED TO THE CONFIDENTIALITY THAT IS SUPPOSED TO BE
ASSURED FOR THESE PATIENTS BY LAW
 
Or is it that I am just one of the few people intelligent enough to know what 
a Doctor or Nurse is talking about?
 
Is there any other way hospitals or clinics in other areas refer to AIDS 
patients, without "disclosing" his/her condition (illegally, I might add).  If 
there is, can someone out there pass this along to the health care 
"professionals" in Milwaukee, Wisconsin?
 
Or should someone just start another million dollar lawsuit for violation of 
these laws?
 
Annoyed

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HAMER%VCUVAX.BITNET@oac.ucla.edu (ROBERT M. HAMER) (08/18/90)

Annoyed.As.Hell@p0.f69.n154.z1.fidonet.org (Annoyed As Hell) writes:

>30 seconds after we sat down in the waiting room, the receptionist called into
>patient admitting, and, in a regular voice audible throughout the waiting room
>o any and all others present "Acquired Immune Deficiency Syndrome-Peunomonia."

First, the receptionist should never have, in a "regular voice audible
throughout the waiting room to any and all others present," made a
statement about your friends condition, complaint, or problem.  That
is a clear violation of anybody's idea of confidentiality.  You should
write a letter of protest.  In all honesty, however, the letter will
probablly wind up in the wastebasket.

Now, on to your second objection:

>Additionally, his room has in big black and white letters "Blood & Secretion
>Precautions" for all to see, including visitors and other patients on the
>entire floor!

>Isn't there some way Doctors, Nurses, and Medical Professionals could refer to
>these patients and this diagnosis, without alarming everyone else within

I would assert that the BIG, "Blood and Secretion Precautions" sign on
his room is functional and necessary.  Everyone, from physicians, nurses,
janitors, etc, _and_ visitors, need to be aware that they need to take
special precautions.  People involved in direct medical intervention need
to be aware of the possibility of needle sticks, burst specimen containers,
etc.  They need to know that they need to be especially to be sure to take
all the precautions they are supposed to be taking anyway.  The janitors
need to be aware that if they are moping up vomit they need to be careful
about how they treat it.  (Footnote:  we all know no one is going to catch
HIV from vomit, at least not unless one eats large quantities of it, but
the regs and procedures demand that it be treated appropriately.)
Visitors need to know so that they can take appropriate pracautions
themselves, and more importantly, so that they are careful not to
potentially infect an immune-impaired patient.

I know it is not fun; I know hospitals are dehumanizing, impersonal,
insensitive, often degrading places, but it is pretty much that way
for everyone, not just HIV infected folks.  People with many other
infectious diseases have the same signs on the doors.  Some of those
diseases may be transmitted by vomit far more easily than HIV disease.

>earshot?  Couldn't a code, or number, or even a red piece of tape on the
>patients door be used to alert medical personnal of precautionary conditions?

The precautions aren't and shouldn't be coded.  They should be plain and
obvious.  Everyone who works in that environment needs to be reminded of
them so they don't slacken up.

>I cannot tell you how many times I have sat in the doctors office of a major
>physician here in town (with numerous AIDS patients) while names, conditions,
>symptoms or tests (Such as T-cell counts) are spoken of freely and openly.

Wrong, unfortunate, and there is probably not much we can do about it.

>WHAT EVER HAPPENED TO THE CONFIDENTIALITY THAT IS SUPPOSED TO BE
>ASSURED FOR THESE PATIENTS BY LAW

In a medical environment, confidentiality is a joke.  The physicians,
nurses, typists, secretaries, clerks, insurance folks down at BC/BS
and medicaid, etc, all know about your friend and are within whatever
he signed when he got hospitalized that said essentially that the
hospital was free to release any information to anyone who had a
reasonable need to it for financial or insurance purposes.  Any
clerk who knows the procedures can walk into medical records and
fill out a form requesting a patient's chart, and get it.  (Of
course, if it is like our medical records, half the charts are lost
anyway...)  Any physician, unconnected with your friend's care,
can get any chart for "research" purposes.  And his/her secretary.
And his/her students.  Etc.

>Or is it that I am just one of the few people intelligent enough to know what
>a Doctor or Nurse is talking about?

Probably.  Most people probably think HIV disease is something only
homosexuals get, or, conversely, that you can catch it from bug-bites.
I have met physicians with the most illogical and unknowledgable
beliefs about HIV.

>Is there any other way hospitals or clinics in other areas refer to AIDS
>patients, without "disclosing" his/her condition (illegally, I might add).  If

In many hospitals, for valid reasons, HIV patients reside on HIV wards.
By definition, if you on that unit, everyone in the hospital knows that's
what you've got.  That may be unfortunate, but it makes better treatment
sense to have similarly-troubled people grouped in a place where you can
group people trained to help them.  That's why the heart attack patients
are grouped together; the kids are grouped together; etc.

Richard.DeWald@f70.n382.z1.fidonet.org (Richard DeWald) (08/19/90)

I am a nursing student and a clerk in an emergency room.

In a message of <13 Aug 90 23:20:06>, Annoyed As Hell (1:154/69) writes:

 AA>Recently, I helped a friend get admitted into a Milwaukee Hospita, who 
 AA>is diagnosed with AIDS.

That was very nice of you.

 AA>30 seconds after we sat down in the waiting room, the receptionist 
 AA>called into patient admitting, and, in a regular voice audible 
 AA>throughout the waiting room to any and all others present "Acquired 
 AA>Immune Deficiency Syndrome-Peunomonia."

Called into what?  An overhead intercom or a private communication device?  If 
it was an overhead intercom, this would be unacceptable, if it were a private 
line and it was just the loudness of the person's voice that bothered you, 
well, that's another issue (less serious than announcing a diagnosis over an 
intercom).

 AA>Additionally, his room has in big black and white letters "Bloo
 AA>& Secretion Precautions" for all to see, including visitors and other 
 AA>patients on the entire floor!

This is an interesting situation.  Actually, all health care workers are asked 
to observe something called "universal precautions."  In essence, what this 
boils down to is we treat every patient as if he or she has AIDS (or Hepatitis 
B).  We take certain precautions against infection with everyone.

However, in practice, every patient with a known HIV+ status is known to 
everyone there on staff (including the clerk).  People are extra-special 
careful when drawing blood or doing anything that (in the worst possible 
scenario) could result in bodily fluids being splashed onto unprotected skin 
or membranes.

Formally, "blood and bodily secretions precautions" has been eliminated as an 
isolation category because we are expected these days to take these 
precautions with ALL patients.  Some hospitals still hang these signs on AIDS 
or Hepatitis B patients doors and/or charts as a reminder to be extra careful.
 
 AA>Isn't there some way Doctors, Nurses, and Medical Professionals
 AA>could refer to these patients and this diagnosis, without alarming 
 AA>everyone else within earshot?  Couldn't a code, or number, or even a 
 AA>red piece of tape on the patients door be used to alert medical 
 AA>personnal of precautionary conditions?  I cannot tell you how many 
 AA>times I have sat in the doctors office of a major physician here in 
 AA>town (with numerous AIDS patients) while names, conditions, symptoms or 
 AA>tests (Such as T-cell counts) are spoken of freely and openly.

In the strictest theoretical sense, no one but the patient and his (or her) 
associated health professionals should know of a patient's diagnosis.  In 
practice, we talk about our work while at work just like anyone else does.  In 
a way, your concern for the lack of formality about an AIDS diagnosis may 
indicate that your health care workers are treating it like any other 
diagnosis (as they should).  On the other hand, each of those health care 
workers is as familiar with the stigmata associated with the disease as anyone 
else.  Prudence would suggest a bit more discretion would be kind, at this 
stage of the game, I am sympathetic to your concern.  It probably isn't much  
solace to know that this wouldn't happen in MY emergency room.

 AA>WHAT EVER HAPPENED TO THE CONFIDENTIALITY THAT IS SUPPOSED TO BE
 AA>ASSURED FOR THESE PATIENTS BY LAW

Nothing.  It is not only a legal commitment, but a moral and ethical one as 
well.

 AA>Or is it that I am just one of the few people intelligent enough to 
 AA>know what a Doctor or Nurse is talking about?

That would be nice, but it is probably not the case.  An emergency room (or a 
doctor's office) can be an interesting place to wait around.  People hear 
things they shouldn't every day.  However, hearing that so and so in the next 
bed has chest pain is something different from hearing that so and so has 
AIDS.  Your concerns have some substance.

 AA>Is there any other way hospitals or clinics in other areas refer to 
 AA>AIDS patients, without "disclosing" his/her condition (illegally, I 
 AA>might add).  If there is, can someone out there pass this along to the 
 AA>health care "professionals" in Milwaukee, Wisconsin?

No, and I really don't think they should.  AIDS is an equal opportunity 
disease.  HIV can and will infect anyone if given the opportunity.  Your chest 
pain patient (in my emergency room) has as much of a chance of getting his 
diagnosis overheard as your vaginitis or your AIDS patient.  The system isn't 
perfect.

I do agree that AIDS patients deserve special attention owing to the severity 
of their condition, but we should treat them as we do all patients that are 
equally seriously ill--with dignity and care.  Singling them out for special 
services beyond that invites prejudice.

Richard DeWald, BSN Student
Univ. of TX - Austin.

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brugler@cis.ohio-state.edu (Dale P Brugler) (08/22/90)

I beleive that the medical workers in a hospital should be informed if
a patient is HIV positive. However, in 3 major hopsitals in my city
(Columbus, Oh) it is policy that workers not be informed if a patient
is positive.

This means that I may be working on an HIV positive person and I may
not know it at all. The purpose of such policies are to make all
personel cautious with everyone.

I disagree with such a policy. If I am sent to a room to draw blood
from a patient, I want to know that there is a chance that I could be
infected. Usually, when it is another disease or infection besides HIV
you are informed. However, if the person is HIV you may not even know
it yourself. 

I am curious as to policies at other hospitals on informing the
personel of HIV status. Please post with your opinions.

dale.
-=-
Dale Brugler, OSU (614) 292-0915 
For personal mail: brugler@cis.ohio-state.edu
OSU 2036 Neil Ave. Columbus, Ohio 43210-1277

jay@banzai.PCC.COM (Jay Schuster) (08/23/90)

In <38271@shemp.CS.UCLA.EDU> brugler@cis.ohio-state.edu (Dale P Brugler) writes:
>I beleive that the medical workers in a hospital should be informed if
>a patient is HIV positive.

>However, in 3 major hopsitals in my city
>(Columbus, Oh) it is policy that workers not be informed if a patient
>is positive.

The main hospital here (Medical Center Hospital of Vermont) is on
Universal Precautions.  As I understand it, this means that you are
to assume that everyone is HIV/HepB/place-favorite-blood-borne-
disease-here infected.

>The purpose of such policies are to make all personel cautious with everyone.

>I disagree with such a policy. If I am sent to a room to draw blood
>from a patient, I want to know that there is a chance that I could be
>infected.

The problem seems to be that you and other people want to know so
that you can be *more* careful with the infected patient.  The
hospital doesn't want to test everyone, or deal with the liability
in the case of a messed up test, or deal with the privacy issues
involved (once everyone in your town knows that you are HIV positive,
you will get treated very differently -- and although that stuff
is *supposed* to be private, medical staff tend to blab more stuff
than is necessary most of the time, from personal experience).
-- 
Jay Schuster <jay@pcc.COM>	uunet!uvm-gen!banzai!jay, attmail!banzai!jay
The People's Computer Company	`Revolutionary Programming'

rhc@PacBell.COM (Robert Cohen) (08/25/90)

In article <38314@shemp.CS.UCLA.EDU> jay@banzai.PCC.COM (Jay Schuster) writes:
->In <38271@shemp.CS.UCLA.EDU> brugler@cis.ohio-state.edu (Dale P Brugler) writes:
->>I beleive that the medical workers in a hospital should be informed if
->>a patient is HIV positive.
->
->>However, in 3 major hopsitals in my city
->>(Columbus, Oh) it is policy that workers not be informed if a patient
->>is positive.
->
->The main hospital here (Medical Center Hospital of Vermont) is on
->Universal Precautions.  As I understand it, this means that you are
->to assume that everyone is HIV/HepB/place-favorite-blood-borne-
->disease-here infected.
->
->>The purpose of such policies are to make all personel cautious with everyone.
->
->>I disagree with such a policy. If I am sent to a room to draw blood
->>from a patient, I want to know that there is a chance that I could be
->>infected.
->jay@pcc.COM writes:
->The problem seems to be that you and other people want to know so
->that you can be *more* careful with the infected patient.  The
->hospital doesn't want to test everyone, or deal with the liability
->in the case of a messed up test, or deal with the privacy issues
->involved (once everyone in your town knows that you are HIV positive,
->you will get treated very differently -- and although that stuff
->is *supposed* to be private, medical staff tend to blab more stuff
->than is necessary most of the time, from personal experience).

Don't forget that someone may be infected and able to tranmit the 
virus _without testing positive on the antibody test_.  There is always
the chance you could be infected if you don't take precautions, regardless
of whether someone has been tested.  I understand why medical professionals 
want to protect themselves, but the safest policy seems to be universal 
precautions.  

There is still rampant discrimination around this disease in this country.
Until that changes, disclosure of HIV infection will continue to be a
civil rights issue as well as a medical one.

Take care,

-- 
  
Robert Cohen San Francisco, California 		rhc@PacBell.COM
{att,bellcore,sun,ames,pyramid}!pacbell!rhc
work:  415-542-5517   home: 553-4033