conant@bmcg.UUCP (03/07/84)
There is at last an organization dedicated to helping
those affected with the Marfan Syndrome, and the
families of those affected. The Marfan Syndrome is
a heritable disorder of the connective tissue which
affects several bodily systems. The most dangerous
problem in the syndrome is aortic dissection and/or
rupture.
There are chapters of this organization, the
National Marfan Foundation, in several states.
The address of the headquarters is:
The National Marfan Foundation
Priscilla Ciccariello, President
54 Irma Avenue
Port Washington, NY 11050
Tel. (516) 883-8712
Bob Conant {sdcsvax||ihnp4!sdcrdcf}!bmcg!conant