[net.women] "Those who understand invariably decline"

sdb@shark.UUCP (Steven Den Beste) (09/01/83)

Liz Allen posted an article from a "pro-life" group which condemned
amniocentesis. In there was a statement:

"Gordon finds that couples who who clearly understand the statistics
and the relative risks in amniocentesis invariably decline the procedure."

Now that is a pretty strong statement - "invariably"? Not one couple in the
Entire U.S. has Ever had amniocentesis when the risks were explaned?

I suspect that in the minds of those who published it, the statement
is really true; consider:

If anyone would use this devil-spawned technique, it must be because
they don't understand how evil it is.

If they use it, they don't understand it fully.
QED If they understand it fully, they don't use it.

With respect to the "danger", many of the dangers cited were dangers
that an otherwise-normal fetus mght be spontaneously aborted.
If one subtracts that (i.e. if one does not consider that a "danger"),
I bet that amniocentesis becomes safer than the chances of having
a deformed baby in the high-risk group!
(Also keep in mind that the procedure is being improved all the time.)

Just why is this group against amniocentesis? Obviously - because
amniocentesis is a useless technique unless one is willing to folow
through with an abortion based on the results, and of course abortions
are immoral.

   Steve Den Beste
   Tektronix
   [decvax|ucbvax]!tektronix!tekecs!shark!sdb

liz@umcp-cs.UUCP (09/03/83)

In respone to Steve Den Beste's article on amniocentesis.

I think that when Gordon (a doctor quoted in the Center for Life
article) made that statement, he just meant of the couples he knew
about -- not a broad group of people probably.  He was probably
just going on his observations as we do when we say that a particular
system loses -- we mean that the people we know of who have used
it have had a hard time.  Besides, given the statistics he sites,
you can see why couples would decline the procedure.

I don't think the article was meant as anything except a warning
to those who are undergoing or being advised to undergo that
procedure.  I don't think anyone views that technique as "devil-spawned"
(even if it is used sometimes for the wrong reasons -- some couples
select for the sex of the child that way...).  It's just that these
days most women considered as risks automatically undergo the
procedure.  I know of women who have had problems persuading their
doctors that they did not want to have it done.

It might be possible that amniocentesis is "safer" if you don't
consider the risks to the unborn, but I don't think many couples
want to risk the health of their unborn if they want to have a
baby.  Even if they don't believe that the unborn is really human
yet, they see the potential and don't want any harm to come to a
healthy fetus.

It is true that the group who published this article is pro-life
(as I am (as you no doubt know...)), but I think there is a little
more to it than that.  Amniocentesis is largely done with the idea
in mind to abort a fetus that is not healthy (or of the wrong
sex...), but I don't think a doctor would say that that is the only
reason.  The first time I heard about it was in an article in
Science '81 (Jan/Feb) which described the procedure and favored
doing it whether or not the woman would consider having an abortion.
They argued that it's better to know that the baby was going to be
defective so that the couple can be prepared for that possibility
rather than waiting 9 months and finding out so suddenly.

Actually, from rereading the article, they were not advocating
amniocentesis as a procedure all high risk women should undergo
unless blood tests had showed a high level of AFP (alphafetoprotein).
In fact, part of the beginning of the article reads (without
permission, of course!):

	"Two by two the expectant parents nervously take their
	seats...  Their ... common bond is the anxiety that shows
	in their restless hadns and fretful eyes.  They are worried
	about the helth of their unborn children.

	"So they have come to this hospital clinic in Stony Brook,
	NY where doctors can tell months before their babies are
	due whether the infants are the victims of potentially
	severe defects of the spinal cord and brain.  Unlike the
	more costly and potentially dangerous genetic screening
	procedures that involve withdrawing fluid from the womb,
	the program here begins with an innocuous blood test for
	... AFP."

The article goes on to recommend a different procedure which would
be used for all pregnant women.  Their statistics go as follows.

	0.  Start with 1000 pregnancies.  1.  AFP screening --
	blood test yields 950 negative.  2.  AFP screening again
	on the 50 several days later -- 20
	    negative.  3.  Do ultrasound testing on remaining 30
	-- 15 had high
	    AFP levels because of incorrect fetal age, twins, or
	    other reasons.  4.  Amniocentesis on the other 15 --
	13-14 are cleared.  5.  Repeat ultrasound and amniocentesis
	with test for
	    actylcholinesterase.  6.  1 or 2 shown to have neural
	tube defects.

Notice that amniocentesis is not done until there is a 1-2 chance
in 15 that there is a problem.  This procedure seems better since
less harm is likely to be done and fewer fetuses aborted by accident.

The last few paragraphs are telling of the ethical problems
surrounding the procedure:

	"But the most difficult question surrounding AFP screening
	and future broad-based genetic testing has little to do
	with economics or regulatory considerations.  As we learn
	to detect more imperfections and eliminated more fetuses,
	will we in fact be losing more than we gain?  It is a
	question that's powerfully framed every week at a clinic
	300 miles from Stony Brook in Washington, DC.

	"In the middle of the pastel yellow waiting room on a Monday
	afternoon, a young mother sits with her son, Andrew, a
	two-and-a-half-year-old with a large round face, big brown
	eyes, and a joyful smile.  His mother boasts that Andrew
	demonstrated the intellectual capacity of a four-year-old
	on a recent intelligence test.  Lifting him momentarily,
	she reveals the only outward signs of a health probelm:
	Andrew's legs droop lifelessly.  Spina bifida has paralyzed
	them.

	"Here at Georgetown University Hospital's spina bifida
	clinic, parents learn to cope with and care for their
	handicapped children.  Few of them have undergone AFP
	screening, but every one of them who was asked said that
	it wouldn't have changed a thing.

	"'Every day Andrew does or says something that makes me
	thank God I have him,' says his mother, beaming.  'He's a
	blessing.'"

You may want to read the article for yourself...

-- 
				-Liz Allen, U of Maryland, College Park MD
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