[net.med] Cystic Cytosis

ecn-ec:ecn-pc:ecn-ed:feldmark@pur-ee.UUCP (Mark Feldman) (09/21/83)

While traveling with a very good friend of mine from India in March, he 
began having a series of 'epileptic-type' seizures. He had no history
of these and ended up spending a week and a half in the hospital in
Pittsburgh.  After many many tests, he was told he had a spot on his 
brain and later that he had something called 'Cystic Cytosis' (that's
how it sounds...don't know how it's really spelled).  This was explained
as a small bag containing some kind of larvae that were the cause of the
spot on his brain.  He was released and told to have it looked at in 
about 6 months and given an anti-seizure medication to take. (I think
Dilantin ?)  Last week he had another series of attacks and ended up
again in a local hospital with a prolonged head-ache.  They told him
nothing could be done because if they operated and the sac broke he 
would die.  (Likewise I assume if they don't operate and the sac broke
he assumes the same result)  It seems like in this day and age something
could be done.  Does anyone have any information on this problem ?
The doctor DID *NOT* reccomend getting a second opioion...very 
suspicious.  This guy is a good friend who now thinks he's going to
die.  I would appreciate ANY info (good or bad) to pass along to him.

P.S. He IS planning to get a second opinion, but he's feeling fine now
     and isn't in too much hurry because of school.
    
                              --Mark Feldmark
                                (feldmark at pur-ee...sorry don't know a path)